meeting at Presbyterian Hospital of Dallas
The September meeting is scheduled for Monday the 14th, from 6:30 – 8:00 PM (directions below).
Brain Aneurysm Awareness Month - an exercise in patient advocacy.
Tonight we will hear from brain aneurysm survivors AND also talk about patient advocacy. Since this is a vast subject, we will focus on the following:
There are a number of national organizations that represent individual conditions of brain dysfunction, e.g. National Stroke Association, Brain Aneurysm Foundation, Brain Injury Association. It could be argued that instead of focusing on the individual condition, many brain injury survivors would be better served by using a "global" approach. For example, many brain aneurysm and other stroke survivors are not told they have a brain injury, and this can contribute to recovery frustrations.
A common theme that many health care organizations adopt, probably without being fully cognizant of the practise, is the use of fear of death as a motivator. For those of us who have actually faced death, been returned to life and spent some time in therapy to rid ourselves of the post traumatic stress associated with having survived such an experience, this negative motivator no longer has a place in our lives. We have found joy in living.
But how do we as patients teach those who are supposedly advocating on our behalf? During tonight's meeting, we will take a look at two brochures published by the Brain Aneurysm Foundation - and brainstorm about how to turn the negative aspects (fear of death as a motivator) into positive (joy of life). Our goal is to create an alternative marketing plan to send to the Foundation. Please take some time to review the brochures and write down your initial reaction to the handouts.
There are a number of national organizations that represent individual conditions of brain dysfunction, e.g. National Stroke Association, Brain Aneurysm Foundation, Brain Injury Association. It could be argued that instead of focusing on the individual condition, many brain injury survivors would be better served by using a "global" approach. For example, many brain aneurysm and other stroke survivors are not told they have a brain injury, and this can contribute to recovery frustrations.
A common theme that many health care organizations adopt, probably without being fully cognizant of the practise, is the use of fear of death as a motivator. For those of us who have actually faced death, been returned to life and spent some time in therapy to rid ourselves of the post traumatic stress associated with having survived such an experience, this negative motivator no longer has a place in our lives. We have found joy in living.
But how do we as patients teach those who are supposedly advocating on our behalf? During tonight's meeting, we will take a look at two brochures published by the Brain Aneurysm Foundation - and brainstorm about how to turn the negative aspects (fear of death as a motivator) into positive (joy of life). Our goal is to create an alternative marketing plan to send to the Foundation. Please take some time to review the brochures and write down your initial reaction to the handouts.
Please send a reply email to Kimberly Aikman (aikmank@gmail.com) or call 214 289 0286 so we know to expect you.
Directions to Presbyterian Hospital:
Presbyterian Hospital of Dallas is located on Walnut Hill Lane, just east of U.S. 75 (Central Expressway). The meetings are in the
Directions to Presbyterian Hospital:
Presbyterian Hospital of Dallas is located on Walnut Hill Lane, just east of U.S. 75 (Central Expressway). The meetings are in the
Fogelson Building, Ground Floor, Classroom A
Presbyterian Hospital of Dallas
8200 Walnut Hill Lane
Dallas, TX 75231
Presbyterian Hospital of Dallas
8200 Walnut Hill Lane
Dallas, TX 75231
When turning into the campus from eastbound Walnut Hill, the best route to take may be the driveway prior to the light for the main entrance. The driveway curves away from the main entrance (direction towards North Central Expressway) and the entry to the parking lot is on the left (gated entry). The Fogelson Building has a small dome on top and is next to the Margot Perot Center.
Using the underground parking is the easiest way to reach the meeting location; if entering from the main floor, cross the foyer (past the stairs) and take the elevators to the ground floor. Classroom A is to the left off the elevators.
Remember that parking is now free! Be sure to get your validation sticker at the start of the meeting.
Neither Lifelines nor Presbyterian Hospital of Dallas endorse or recommend any method, treatment, or a program for persons with a brain injury. The intent of the group is to provide support and make information available. Attendance in the group is not a substitute for an informed discussion between a patient and his/her health care provider. No endorsement is intended nor implied.
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